Belgian Cancer Registry: Paediatrics: Late effects

The registration project "Paediatrics - Late effects" (PLE) is an initiative of the Dutch-speaking paediatric haemato-oncology centres and is supported by the French-speaking centres. The project has been set up by the Belgian Cancer Registry and the Belgian Society of Paediatric Haematology Oncology (BSPHO) with financial support of Kom op tegen Kanker. The PLE project has as main objective to collect and explore the acute and late side effects associated with the treatment of cancer in children and adolescents. With this information we aim to gain more insight into the late effects, identify unknown side effects and develop evidence-based guidelines to prevent late effects of cancer treatments in children and adolescents. Thanks to financial support of Stichting tegen Kanker (2019-2020), a specific project focusses on Hodgkin Lymphoma patients. The project is available online to treating physicians and their registration staff since September 2017 and includes cancer patient registrations from 0 until and including 19 years at the time of diagnosis. Registration takes place via the Web Based Cancer Registration (WBCR) application of the Belgian Cancer Registry (module Paediatrics - Late Effects).